I called a lot of people but I should write here as well… Nina does not have Cystic Fibrosis. Melissa forbade me from digging through the internet and finding everything there is to know about it — and this turned out to be a good call. As it is I’m probably bordering on an ulcer, why push the envelope?
Melissa made a care page entry, which I will share below. Also I am going to take time out tonight to try and set up a few blog entries as a both a catch-up and celebration.
Melissa writes:
July 23, 2010–No CF!!!
Posted 10 hours ago
Just received results from the sweat chloride test, which confirmed that Nina does NOT have Cystic Fibrosis. Praise God! Thanks to everyone for your prayers and support. So glad the results came back quickly for this one and are conclusive. Will make for a much better weekend!
Now just waiting on results from the CT scan to confirm the blocked nasal passage and corresponding next steps for surgery. But that conversation may wait until our next scheduled appointment with the ENT on August 19, as the surgery was not classified as urgent/emergent. I’ll keep you all posted if I learn more.
My “go to” verse for all things Nina related:
“For I know the plans I have for you,” declares the LORD, “plans to prosper you and not to harm you, plans to give you hope and a future.” Jeremiah 29:11
Thank you God for being so much bigger and stronger than I am, and for always carrying me and my family through these trials. I feel so weak and helpless most of the time. Even when I worry, doubt and break-down, you are there. Your grace really is sufficient for me. I give you the glory.
-Melissa
https://outoftheirminds.com/wp-content/uploads/2022/02/ootmd-logo-dark-wings-3Asset-15.svg00vrbfwhttps://outoftheirminds.com/wp-content/uploads/2022/02/ootmd-logo-dark-wings-3Asset-15.svgvrbfw2010-07-23 20:54:172010-07-23 20:54:17Ooh Child, Things Will Get Brighter…
The tests for Nina have been scheduled for this Thursday (July 22). We start off the day with another physical therapy appointment for her head/neck from 9-10 a.m. at Mary Free Bed. (Nina’s first physical therapy appointment was today and she did great!) We go immediately from Mary Free Bed over to Spectrum Health/Helen DeVos Children’s Hospital for a 10:30 a.m. sweat chloride test, checking for Cystic Fibrosis. I know the sweat collection takes at least 30 minutes, but not sure how long the entire appointment will last. Our final test on Thursday is the CT scan at 1 p.m. to confirm whether Nina needs surgery for her blocked nasal passage. I was asked to bring Nina tired and hungry to that appointment in hopes of feeding her on-site and having her fall asleep for the scan. Otherwise, they will have to sedate her. Please pray that everything aligns on Thursday so that she will fall asleep at just the right time! The scan itself is only suppose to take about 5 minutes. I’ve been told that results from both of these test will take approximately 3-5 days, but I’m not holding my breath. We’ve been through this waiting before, so we’ll just see.
I must say a public thank you to God for coordinating all these appointments. I had not mentioned Nina’s scheduled therapy times to the referral coordinator who scheduled these additional tests, and amazingly I don’t have any meetings on my calendar at work on Thursday. I’m sure God really had a hand in all this planning. Amazing!
Now an update on our other child–sweet 3-year old Ian. He has been having intestinal issues (i.e. loose bowel movements/diarrhea) off and on for a couple weeks now, so we decided it was time to take him into the doctor to find out what was going on. Daran took him yesterday (Monday, July 19) and found out that Ian has lost a pound since his last appointment on June 23. The doctor was concerned about the weight lost so prescribed Zantac to see if that would help calm any stomach acid he has and hopefully correct the diarrhea to get him back on track with weight gain. The doctor also told Daran that we have 10 days to “fix” the problem or Ian would be referred to a GI specialist for further testing. (When it rains, it pours!) Please pray that this issue resolves itself and that there is no underlying problem(s) causing this symptom. Please also pray that Ian is willing to take his medicine–he spit out the dose this morning.
Daran and I are hanging in there and keeping ourselves occupied. Thankfully we have just bought a new house and are moving at the end of next week (also in God’s plan I’m sure!). This “distraction” has helped to keep our minds off worrying 24/7. Please pray that God continues to coordinate all our schedules as perfectly as He has so far, and that he will give our family the peace, patience and perseverance to get through the next several weeks… especially as we wait on test results for Nina.
The reference of the title is from the incident made famous by a relatively forgettable movie, wherein three large storms coalesced into one very large, very nasty storm, sinking a fishing boat and her crew. However our perfect storm has to do with the end of July — and I’m asking everybody to bear with our family for a little bit while we weather through it. What are our three large storms combining together?
1.) Packing, moving, and un-packing.
2.) I have a work deadline that falls right around closing day, if not precisely on closing day for the houses. That deadline represents the potential for three more years of work.
3.) Most importantly, Nina’s test this upcoming Thursday for cystic fibrosis should be analyzed by then, and while obviously the result could be a very happy thing, it is the worry ABOUT that verdict that contributes to our perfect storm.
Updates to the blog may again be spotty at best, and I apologize for that. I’ll squeeze them in when I can.
I love you all. Prayers if you have time and the inclination, please.
Ooh Child, Things Will Get Brighter…
I called a lot of people but I should write here as well… Nina does not have Cystic Fibrosis. Melissa forbade me from digging through the internet and finding everything there is to know about it — and this turned out to be a good call. As it is I’m probably bordering on an ulcer, why push the envelope?
Melissa made a care page entry, which I will share below. Also I am going to take time out tonight to try and set up a few blog entries as a both a catch-up and celebration.
Melissa writes:
Presently: Kid Update
From our CarePage via Melissa:
The Perfect Storm
The reference of the title is from the incident made famous by a relatively forgettable movie, wherein three large storms coalesced into one very large, very nasty storm, sinking a fishing boat and her crew. However our perfect storm has to do with the end of July — and I’m asking everybody to bear with our family for a little bit while we weather through it. What are our three large storms combining together?
1.) Packing, moving, and un-packing.
2.) I have a work deadline that falls right around closing day, if not precisely on closing day for the houses. That deadline represents the potential for three more years of work.
3.) Most importantly, Nina’s test this upcoming Thursday for cystic fibrosis should be analyzed by then, and while obviously the result could be a very happy thing, it is the worry ABOUT that verdict that contributes to our perfect storm.
Updates to the blog may again be spotty at best, and I apologize for that. I’ll squeeze them in when I can.
I love you all. Prayers if you have time and the inclination, please.